It’s been two months since I saw the autonomic neurologist in London and I’m still waiting for all my referrals. Having an undiagnosed chronic illness is just a waiting game at this point. It’s so frustrating that it’s 2 months later and I’m still waiting for my letter!
2 months ago
I wrote about the autonomic neurologist appointment in this post, but I thought I’d recap briefly, as two months is a long time.
On 10th January 2019, I had an appointment with a specialist autonomic neurologist. I was referred there after the specialist dermatologist suspected I have hypermobile Ehlers-Danlos Syndrome and dysautonomia. The appointment was long, so read this post if you want to learn more. The outcome of the appointment was three more referrals – to a rheumatologist, to a neuropsychiatrist and for cardiac testing.
2 months later I’m still waiting for my letter
About a week ago, I finally got a copy of the letter the neurologist wrote to the neuropsychiatrist. That was nearly two months after my neurology appointment! I still haven’t had copies of the letters to the rheumatologist and for cardiac testing. I also don’t have any referral appointments, either. All the other referral and appointment letters were written in about a week after the appointment, for example, the referral to the neurologist from the dermatologist was written seven days after the appointment, and I received the letter a few days later. I also have follow-up appointments scheduled for the dermatologist and neurologist, just no referral letters. It’s so frustrating!
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