2 Months Later I’m Still Waiting for My Letter

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The background is a blue wall. There is a sunflower in a white vase on a cream table. The foreground is dark grey text that reads "Still Waiting for My Letter". - 2 Months Later I'm Still Waiting for My Letter

It’s been two months since I saw the autonomic neurologist in London and I’m still waiting for all my referrals. Having an undiagnosed chronic illness is just a waiting game at this point. It’s so frustrating that it’s 2 months later and I’m still waiting for my letter!

2 months ago

I wrote about the autonomic neurologist appointment in this post, but I thought I’d recap briefly, as two months is a long time.

On 10th January 2019, I had an appointment with a specialist autonomic neurologist. I was referred there after the specialist dermatologist suspected I have hypermobile Ehlers-Danlos Syndrome and dysautonomia. The appointment was long, so read this post if you want to learn more. The outcome of the appointment was three more referrals – to a rheumatologist, to a neuropsychiatrist and for cardiac testing.

2 months later I’m still waiting for my letter

About a week ago, I finally got a copy of the letter the neurologist wrote to the neuropsychiatrist. That was nearly two months after my neurology appointment! I still haven’t had copies of the letters to the rheumatologist and for cardiac testing. I also don’t have any referral appointments, either. All the other referral and appointment letters were written in about a week after the appointment, for example, the referral to the neurologist from the dermatologist was written seven days after the appointment, and I received the letter a few days later. I also have follow-up appointments scheduled for the dermatologist and neurologist, just no referral letters. It’s so frustrating!

If you loved this post (and I’m SURE you did, considering you’re reading this), you NEED to check out my eBook 10 Things You Need to Know About Living with Chronic Illness!

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