I’ve decided that I’ll be participating in A Chronic Voice’s monthly chronic illness linkups. I’ve already taken part in May and June’s linkups, which means it’s now time for A Chronic Voice’s July 2019 linkup party! You can see A Chronic Voice’s linkup post for this month here.
A Chronic Voice’s July 2019 Prompts
The prompts for this month are:
I’ll be writing about starting, concluding and planning when you have a chronic illness.
Last Thursday I had my first appointment with Kim my seizure nurse. This is the start of my recovery. The appointment went really well and she hopes that eventually I will be off all my medication and out of my wheelchair! She specialises in Functional Neurological Disorder (FND) as well as epilepsy, so she’s the perfect person to oversee my appointments and recovery. I’m excited to see how she can help me get back to a more normal life.
A couple of weeks ago I had my last physio and occupational therapy appointments! We spent the whole time just talking and both my physio and OT think they don’t need to see me again – that’s two specialties crossed off my list! I’ll probably need physio and occupational therapy again in the future, but for now, I’m glad I don’t have them. I have a lot of doctors and the list just keeps getting longer, so it’s nice for it to get smaller for a change.
It’s impossible to plan for the future when you have a chronic illness. You just don’t know what’s going to happen or how you’ll be feeling. Planning is something I really struggle with. I hate to commit to things in fear that I won’t be up to doing them when they come around. This makes my life very isolated, and I’m sure I’m not the only one who feels this.
While I’m writing this, I’m staying with my Granny and her dogs by the beach. I’ve been planning this for a couple of months but had to cancel twice due to hospital admissions (see this post for more information) and flare-ups. This is just a small-scale example of how life, especially chronic life, never goes to plan. A large-scale example is the fact that I can’t study or take my A Levels (at least not yet), so I can’t go to uni like I want to and like all my friends are doing in September.