This month, I’ve decided to take part in my first linkup party! This is A Chronic Voice’s May 2019 linkup party and I’m so excited to be doing this!
A linkup party is an online get-together where you’re given prompts to write a short excerpt about. These could be on literally anything, and everyone has a different view of each prompt. Linkup parties give you the opportunity to write about things you may not necessarily think to write about, share your opinions and learn more about others.
You can see A Chronic Voice’s post and prompts here: https://www.achronicvoice.com/2019/05/02/may-2019-prompts/
A Chronic Voice’s prompts for this month are:
I’m loving the prompts for this month! Once I’d decided on what I was going to write about, I knew I had a lot to say. So, I’m warning you now… this post is going to be long!
Regrouping is a really interesting prompt for this month because I can talk a lot about friendship groups and finding your new group/community when you have a chronic illness (don’t worry, I won’t write too much though!).
When you’re chronically ill, you lose friends. It’s inevitable. They don’t want to have to ‘deal’ with your illness and you not showing up to things. It’s not your fault!
The chronic illness community is amazing. They are so supportive and you have the opportunity to make some amazing friends! Even in the chronic illness community people won’t understand what you’re going through – no one besides you does – but they have a better understanding than most other people.
This is what I think when I see the term ‘regrouping’. It’s finding new friends and a new community when you’re ‘abandoned’ by people who are different from you and who don’t understand you.
This is by far my favourite prompt for this month’s linkup party!
When you’re chronically ill, especially with an invisible or rare illness, you have to become your own ‘detective’ and investigate what’s wrong with you. I’ve had to do this a lot over the past couple of years. I even have a huge file filled with research and information about myself and possible diagnoses!
Not all doctors are supportive of those with chronic illnesses, especially if they don’t know enough about them. You have to do your own research to find out what’s wrong with you and then try and suggest things to your doctors. You have to investigate yourself and look for possible causes and diagnoses. You literally become the detective for your body, searching for answers.
I’m going to use this prompt to talk about setting boundaries when you have a chronic illness. After all, setting boundaries is a huge part of living with chronic illnesses.
You have to learn when to say “no”. It’s okay to say “no” to things, even if you’re not chronically ill, but it’s vital if you have a chronic illness. If you don’t, you’ll likely make everything 100x worse for yourself. It takes practice and patience, but eventually, you’ll be able to do some things you want to do. You just have to stop and learn to say “no” first.
Although saying “no” to things is important when you have a chronic illness, you also have to learn to say “yes” to things, too. You don’t want to wake up one day and realise you’ve missed out on your whole life. You have to learn balance – to say “no” to a lot of things, but say “yes” to enough that you actually live, not just exist.