On Thursday, I had my appointment with another neurologist, this time an autonomic specialist. It didn’t go how I expected it to, but it was still good.
I’m very surprised by how well I coped in London. I still can’t walk very well, so I had extra strain on my other leg which can be painful. Luckily, the hospital was far enough away from the train station for it to be worth getting a taxi so I didn’t have very far to walk. Even though we got a taxi to the hospital, my legs still became weak.
The appointment itself went quite well. Due to what happened over Christmas, the doctor focussed more on my mobility and speech issues rather than the suspected dysautonomia, but it was definitely worth going. He did various physical examinations and has referred me to a neuropsychiatrist. I am also going to have a cardiac assessment and need to go to my GP to get a referral to a rheumatologist to test for hypermobile Ehlers-Danlos Syndrome.
Overall, I am really happy with how the appointment with this neurologist went and with my next steps. I’m also very pleased with how well my body coped being in London, as my knee isn’t inflamed this time!
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