Endometriosis: A Supporter’s Perspective

Guest post: Endometriosis: A Supporter’s Perspective by Lucjan Living with Endometriosis There is really nothing more miserable than seeing your loved one in pain day by day and knowing, you can do nothing about it! Hi, I’m Lucjan B. and this is my story. A few words from a man who supports someone suffering from […]

Living with Chronic Fatigue Syndrome: Tanya’s Story

Guest post: What It’s like Living with Chronic Fatigue Syndrome by Tanya My name is Tanya and I’m living with Chronic Fatigue Syndrome. I’ve been sick for 27 years. It started shortly after my first child was born. What is Chronic Fatigue Syndrome? Chronic Fatigue Syndrome, also known as Myalgic Encephalitis (ME), is a condition […]

Living with Dystonia: Tom’s Story

Guest post: What It’s like Living with Dystonia by Tom Seaman I have lived with chronic pain from dystonia for almost 20 years. Since it is often very difficult for others to understand what it feels like, I want to provide some information about what it is, how it feels, and how living with dystonia […]

Living with Trigeminal Neuralgia: Liz’s Story

Guest post: What It’s like Living with Trigeminal Neuralgia by Liz I live with a facial pain condition called trigeminal neuralgia. I have other pain issues too including a back problem which resulted in me having to take early retirement when I was twenty-eight. My back pain is extremely debilitating, but trigeminal neuralgia is just […]

Living with Hereditary Lymphedema: Jordyn’s Story

Guest post: What It’s like Living with Hereditary Lymphedema by Jordyn. You can find Jordyn’s previous guest post on Erythromelalgia here. Hello again! My name is Jordyn and I’m chronically ill. I actually have many different chronic illnesses, but I thought that today we would talk about one of the rarer ones. I am living […]

Living with Mitochondrial Disease: Kelcie’s Story

Guest post: What It’s like Living with Mitochondrial Disease by Kelcie Miller-Anderson My name is Kelcie Miller-Anderson, a twenty-something social entrepreneur and scientist from Canada. I also have several rare diseases. 3 to be exact, but the one that is most significant and impacts my life daily is called Mitochondrial Disease. What Is Mitochondrial Disease? […]

Living with Functional Neurological Disorder (FND): My Story

After so many guest posts for my What It’s Like Living With series, I thought I’d contribute myself and share what it’s like living with Functional Neurological Disorder (FND). It’s been 2.5 years but I finally know what’s wrong with me (part of it, at least) and why it happened. I have a chronic illness […]

Living with Erythromelalgia: Jordyn’s Story

Guest post: What It’s like Living with Erythromelalgia by Jordyn Hi, my name is Jordyn and I have many different chronic illnesses. However today, I want to talk about one of the rarer ones in hopes of bringing awareness to it. I am living with Erythromelalgia and no, I don’t know how to pronounce it […]

Living with Stiff Person Syndrome: Amber’s Story

Guest post: What It’s like Living with Stiff Person Syndrome by Amber Hello. My name is Amber and I am excited to be able to share part of my story with you. My husband Shawn and l live in the beautiful state of Oregon. I love photography, all things vintage, thrifting, kayaking, all things tea […]