Living with Hyperthyroidism and Hypothyroidism: Veronica’s Story

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The background is a blue wall. There is a sunflower in a white vase on a cream table. The foreground is dark grey text that reads "What It's like Living with an Underactive Thyroid". - Hyperthyroidism and Hypothyroidism: What It's Like Living With Series

Guest post: What It’s like Living with Hyperthyroidism and Hypothyroidism by Veronica McGale

Hi. I’m Veronica McGale, I’m 41. I have many chronic illnesses, all diagnosed at different ages. The one I’m going to talk about today is my underactive thyroid (hypothyroidism) – and my overactive thyroid(hyperthyroidism)!

For months before I was diagnosed, I just knew something wasn’t right. I was ill but blood tests were coming back as clear. It took my doctor 8 months before I was properly diagnosed.

Overactive Thyroid, also known as hyperthyroidism, is a common hormonal condition that occurs when your body produces too much of the thyroid hormone in your body. Higher levels of the thyroid hormones can speed up the body’s metabolism which can trigger many symptoms, including nervousness and anxiety.

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SYMPTOMS: Lack of appetite, insomnia, weight loss, mood swings, dizziness, sickness, painful joints, unsteadiness on my feet, hair loss, severe fatigue, palpitations, swelling in the neck (due to the thyroid being enlarged), twitching, trembling. The list is endless.

When I was first diagnosed, it was diagnosed as an overactive thyroid (I’ll explain more soon). Doctors got me in urgently, as an overactive thyroid can be extremely dangerous. I had to go on a drug called carbimazole first to bring down my levels back to a manageable level. Then I had to go on thyroxine which I’ve been on ever since I started on the standard dosage of 50mg daily.

I stayed stable for 18 months. Then, my levels started playing up again, so my endocrinologist had to adjust my thyroxine again. 75mg this time. After 6 months, I felt no better. I’m now up to 350mg a day. So at this point, it was decided I would be eligible for radioactive iodine. This will kill the excess hormones, I was told (if only I had known). This requires you to drink a glass of iodine, which then starts its job of killing the hormones. I drank it, then went home to be isolated in my room for 3 weeks, due to being radioactive.

After another check of my levels, my thyroid was stabilising. It stayed stable for just under 2 years. After 2 years I started presenting new symptoms, weight gain being the big one. No matter how much I diet or try to control what I eat, my weight hardly budges.

The doctors were concerned, so they carried out more tests, only to discover I had hypothyroidism, which means my body was running on very little thyroxine. All my symptoms were playing up at the one time and I felt awful. Every day I feel like I have the flu and nothing in my body feels normal. I have a permanent virus, it’s awful. I can wake up one day and have to stay home because I’m floored, even peeing is an effort.

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On a good day, I can maybe get dressed and do some chores around my flat and maybe even get out for a coffee or visit my mum. 16 years later I have a very low quality of life. I try to go to occasions and events, but most of the time I need to give them a miss. I’m an auntie to 3 amazing boys (the reasons I’m still alive). I used to love going to the park with them, playing out in the garden with their trucks or a football. Now when I see them we have to play a board game or watch a movie as I’m unable to run around much. I hate it, I feel like the worst auntie ever.

My fiancée is amazing. My health controls the relationship. We see each other when I’m fit, but we talk every day. I often feel really awful and say to her I’m letting you go to find someone you deserve. She refuses to leave me, which I’m so happy about as I love her so much. We do have fun together. We do normal couple things – dinner, movie, shopping, long walks. She has my back, her support is unwavering. I can be a total nightmare sometimes. If my thyroid is playing up to full capacity, I’m floored with all symptoms, which in turn can make me extremely frustrated. We got engaged in October and plan to marry in 2021 or 2022, money depending.

Previous relationships have been short-lived, as my former partners all branded me as boring and lazy. They just didn’t want to understand my condition.

I was never extremely popular, but I did have a few great friends who I used to meet regularly for lunch, shopping, cinema, dates. Gradually, through the years, I started having to rearrange and friends always got sick of it. Now I have one friend left. I spend most of my time with mum and aunties, and of course fiancée.

I stay in most of the time, so my hobbies are adult colouring, reading, writing and listening to music. Swimming and walking too, when I can. I also do a lot of crafty things. I also use social media to communicate with people.

Doctors told me when I was first diagnosed that life would go on as normal. I feel ripped off. My life has not been normal. I can’t do anything now unless my thyroid allows it. I’ve tried multiple times to end my life due to not wanting to be broken anymore. I hate this. I hate it with a passion, but I’m fighting on, as I have too much to lose. Hypothyroidism may be kicking my butt, however, it will not beat me. I refuse to sink.

I wish I had been told right at the start to prepare for a rollercoaster life, as life will change. If I had been told this, maybe I would have been more prepared.

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I have 4 other chronic illnesses, but I will share these at a later date. Thanks for reading.

Veronica would like to have the NHS website linked. You can reach that here.

If you loved this post (and I’m SURE you did, considering you’re reading this), you NEED to check out my eBook 10 Things You Need to Know About Living with Chronic Illness!

 

The photo is a Pinterest pin which is split into two sections. The background at the top of the pin is light blue with bold white writing that reads "Hyperthyroidism and Hypothyroidism". The bottom of the pin is a photo of a green succulent in a grey pot against a cream/grey background. There is a small white circle in the middle of the pin with a blue medical ribbon in the middle.

2 Replies to “Living with Hyperthyroidism and Hypothyroidism: Veronica’s Story”

  1. Wow Veronica, you have been to hell and back. I too have hypothyroidism, but mine started out as just straight out hypothyroidism not hyperthyroidism. I just take 75 mcg of levothryoxine for mine and have no other ill effects, all though lately I’ve been losing so much weight that I’m wondering if I am going a little over. I feel so bad for you that you have suffered so terribly with your symptoms.

    Isn’t it terrible how our friends drift away from us when we don’t get well within an approved time frame. it’s like we have to get better or we’re wrong or something. Its just so hard for people to understand chronic illness. I’m just so glad you have some supports. Your fiance sounds great! I have a great fiance too. My fiance and i both have cancer in common and he and I both have feeding tubes and use catheters. I also have a central line for TPN, we both use oxygen as well.

  2. Oh wow, I’m sorry you have to deal with this. I have hypothyroidism but not to the extent of this. I take my tablet every morning but that seems to have sorted most of the issues. I’ve never heard a story of someone suffering from both either. Thank you for sharing this story 🙂

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