Living with Stiff Person Syndrome: Amber’s Story

Hello. My name is Amber and I am excited to be able to share part of my story with you. My husband Shawn and l live in the beautiful state of Oregon. I love photography, all things vintage, thrifting, kayaking, all things tea and going on adventures with my husband. I have been on a […]

Living with Fibromyalgia: Stacey’s Story

Guest post: What It’s like Living with Fibromyalgia by Stacey Chapman I awoke at 4:30 am, drenched in sweat. I quickly changed out of my soaking wet clothes and began to shiver. Layer after layer I dressed in and tried quickly getting back into bed. I could subtly feel the nausea and body pain sinking […]

Living with Suspected Endometriosis: Coralle’s Story

Guest post: What It’s like Living with Suspected Endometriosis by Coralle. My name is Coralle and I have chronic pelvic pain due to suspected endometriosis. If you’re not sure what this is, it’s a condition in which the lining of the womb starts to grow outside of the womb. Although I am yet to be […]

Living with Multiple Sclerosis: Karen’s Story

Guest post: What It’s like Living with Multiple Sclerosis by Karen Lanzetta Intro I am Karen Lanzetta and I am living with Multiple Sclerosis, a neurological disease that attacks the myelin sheath (which helps speed nerve conduction) surrounding all neurons in the nervous system. I have had it for decades, but wasn’t diagnosed till Halloween […]

Living with Common Variable Immune Deficiency Disorder: Kiaya’s Story

Guest post: What It’s like Living with Common Variable Immune Deficiency Disorder by Kiaya Louise Cardwell Church Hi, my name is Kiaya Louise Cardwell Church. I have several different kinds of chronic illness but the one that seems to be the root of all my issues is my Common Variable Immune Deficiency Disorder. I’ve had […]

Living with Hyperthyroidism and Hypothyroidism: Veronica’s Story

Guest post: What It’s like Living with Hyperthyroidism and Hypothyroidism by Veronica McGale Hi. I’m Veronica McGale, I’m 41. I have many chronic illnesses, all diagnosed at different ages. The one I’m going to talk about today is my underactive thyroid (hypothyroidism) – and my overactive thyroid(hyperthyroidism)! For months before I was diagnosed, I just […]

Living with Transverse Myelitis: Ami’s Story

Guest post: What It’s like Living with Transverse Myelitis by Ami I’m Ami, I am 24 and from Norfolk, England. I am living with Transverse Myelitis, a rare neurological condition. I was diagnosed in 2018 but symptoms became evident in September 2017. One of the symptoms I experience is changes in sensation – the worst […]