A Chronic Voice Linkup Party: June 2019

I really enjoyed writing a post for A Chronic Voice’s May Linkup so I decided I’d participate in A Chronic Voice’s Linkup Party June 2019! This month I’ll be writing about wondering, turning and desiring when you have a chronic voice. I feel these are very fitting, as recently I’ve been wondering what my life […]

Living with Stiff Person Syndrome: Amber’s Story

Hello. My name is Amber and I am excited to be able to share part of my story with you. My husband Shawn and l live in the beautiful state of Oregon. I love photography, all things vintage, thrifting, kayaking, all things tea and going on adventures with my husband. I have been on a […]

Living with Fibromyalgia: Stacey’s Story

Guest post: What It’s like Living with Fibromyalgia by Stacey Chapman I awoke at 4:30 am, drenched in sweat. I quickly changed out of my soaking wet clothes and began to shiver. Layer after layer I dressed in and tried quickly getting back into bed. I could subtly feel the nausea and body pain sinking […]

It Is Possible to Have Fun When You’re Chronically Ill

I’ve been debating whether I should post this, but ultimately, I wanted to show you that it is possible to have fun when you’re chronically ill. Yes, you have to do things differently, but it is possible! In this post, you’ll find out a few ways to make sure you have fun when you’re chronically ill, even if […]

A Chronic Voice Linkup Party: May 2019

This month, I’ve decided to take part in my first linkup party! This is A Chronic Voice’s May 2019 linkup party and I’m so excited to be doing this! A linkup party is an online get-together where you’re given prompts to write a short excerpt about. These could be on literally anything, and everyone has […]

Living with Multiple Sclerosis: Karen’s Story

Guest post: What It’s like Living with Multiple Sclerosis by Karen Lanzetta Intro I am Karen Lanzetta and I am living with Multiple Sclerosis, a neurological disease that attacks the myelin sheath (which helps speed nerve conduction) surrounding all neurons in the nervous system. I have had it for decades, but wasn’t diagnosed till Halloween […]

Living with Common Variable Immune Deficiency Disorder: Kiaya’s Story

Guest post: What It’s like Living with Common Variable Immune Deficiency Disorder by Kiaya Louise Cardwell Church Hi, my name is Kiaya Louise Cardwell Church. I have several different kinds of chronic illness but the one that seems to be the root of all my issues is my Common Variable Immune Deficiency Disorder. I’ve had […]

Living with Hyperthyroidism and Hypothyroidism: Veronica’s Story

Guest post: What It’s like Living with Hyperthyroidism and Hypothyroidism by Veronica McGale Hi. I’m Veronica McGale, I’m 41. I have many chronic illnesses, all diagnosed at different ages. The one I’m going to talk about today is my underactive thyroid (hypothyroidism) – and my overactive thyroid(hyperthyroidism)! For months before I was diagnosed, I just […]

Living with Transverse Myelitis: Ami’s Story

Guest post: What It’s like Living with Transverse Myelitis by Ami I’m Ami, I am 24 and from Norfolk, England. I am living with Transverse Myelitis, a rare neurological condition. I was diagnosed in 2018 but symptoms became evident in September 2017. One of the symptoms I experience is changes in sensation – the worst […]